A video of Leigh, 88, shows her being lifted carefully out of bed and placed into a wheelchair, unable to stand on her own. Her arms dangle and her head lolls to the side. It was taken before she tried Tasigna.
Afterwards, a second video shows Leigh carefully spooning broth from a soup bowl.
“She can feed herself, which you know might not seem like a big deal to some people but it is for her,” Elizabeth Leigh told NBC News.
“She might spill a little bit but she can do it herself rather than being so frozen that she can’t do it.”
Alan Hoffman, 74, tells his own story. The professor emeritus of social science education at Georgia State University, who lives in Dumfries, Virginia, was diagnosed in 1997.