What People With Parkinson’s Disease Really Want

In the words of Diane: “I remember when Parkinson’s used to be called just a movement disorder … until patients spoke up about the many non-motor symptoms they were experiencing. Now Parkinson’s is classified as a multi-system disorder. Neurologists used to say that pain was not associated with Parkinson’s … until patients convinced them it was.”

Diane sums it up well. In the past 15 years, it was because of patients and caregivers that we have come to understand Parkinson’s for the multi-faceted and complex disease that it is. Now let’s take it a step further. Let’s make sure that patients and caregivers, just like Ann and Jim, have the chance to help us cure it.

Veronica Todaro, M.P.H., is Vice President, National Programs, Parkinson’s Disease Foundation. To learn more about the most recent Community Choice Research Awards and the next cycle of our people’s choice survey,

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