Before I became ill, I was a person who planned everything from A to Z. When I became sick all of those things had to change. All of a sudden my illness controlled my life. It was hard for me to let go of the reins and just live my life. Here are 10 things I learned from having epilepsy. Some of these things surprisingly changed my life for the better.
1. Doctors don’t know everything. I went years without being diagnosed and saw many doctors to no avail. I had to trust myself and my body, trust that I knew that something was wrong with me and eventually I would get the help I so greatly deserved and needed.
2. It is OK to not be OK. I used to be so hard on myself when I had days that all I did was cry, or I could not get out of bed. It took me a long time to understand my body wasn’t OK and it did not matter. It was fine if all I did was watch TV that day. It was OK if I could not get out of bed, because I was fighting every day to be OK and that was enough.
3. Things don’t always have to be extravagant. I used to enjoy skating and dancing and going out to clubs, big events, traveling and all of that. But when you’re chronically ill, you have to enjoy the little things. A cookout at the house so I can stay home and eat. Watching movies at home instead of going out to the theater. Painting my niece’s nails at home instead of taking her to the nail shop.