Endometriosis and PCOS: For too long, no-one believed my pain was real

I had a keyhole laparoscopy to examine my abdomen three months later. I was diagnosed with endometriosis and they removed what they could see.

I also had the Mirena IUD put in to “help”, but had to have it removed four months later because it made me an emotional wreck and I had a period that lasted the whole time it was in.

I saw another specialist a year later who refused to see me because I did not want the Mirena put back in. She wouldn’t even check me for tenderness or pain and told me I likely had irritable bowel syndrome (IBS), even though she had my notes and history in her hand. I felt as though I was back to square one.

I have been hospitalised for burst cysts on my ovaries multiple times. I have also been hospitalised because I’ve been so bloated that I could not pass urine on my own.

Doctors seem as though they have no idea how to help me except give me high-dosage pain medication. I get nauseous so I also have pills for that. I am currently on a combined pill to help control my periods and have extra progesterone and estrogen in my system.

Endometriosis and PCOS are debilitating, isolating and heartbreaking.

When I was 19 I had a miscarriage. Because of my history of missed periods I didn’t even know I was pregnant until I went to hospital. I found out that I was four weeks pregnant and that I was losing this tiny life at the same time.

I’m 21 now, and I still struggle with this. Every day I think about how my body struggles to do the most natural thing a woman is supposed to do. I haven’t started trying to conceive yet, but I know that when I do want to get pregnant I will have a long road ahead of me.

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