In November 2014, when the biopsies from a scope came back positive for severe Crohn’s disease, and I had many questions and emotional reactions. On the one hand, I felt a sense of relief that we finally had an answer, a diagnosis, as to my constant and severe stomach issues, but on the other hand I was devastated to hear I had (another) incurable disease.
For a while I had hoped the severe stomach issues I was experiencing were residual from having Toxic Megacolon a couple months prior and would lessen over time. This just wasn’t the case. Finding out my stomach issues would not resolve and would be a part of me for the rest of my life was hard to accept. I wondered what I did to deserve this and why this was happening to me.
Obviously, I had not done anything and there wasn’t anything I could have done to prevent Crohn’s from developing. There are a few thing I found helpful in coping with my diagnosis that I’d like to share. Hopefully, they will help you regain a sense of normalcy in life. Having a solid support system along with educating yourself about the disease are good places to start. Be prepared and learn as much as you can.
After the diagnosis, I immediately began researching Crohn’s disease so I could better understand what I was dealing with. Having knowledge is power and can be your greatest tool when facing a new condition. Especially in a disease like Crohn’s, where symptoms can range from relatively mild to completely debilitating. It’s important to be familiar with what to expect, the signs and symptoms, along with available medications and treatment options.