If someone you love has been diagnosed with scleroderma, you may be concerned about how to best care for them and what you need to do to ensure they maintain a good quality of life. You will become an integral part of their healthcare team which may be challenging at times.
We’ve compiled a list of tips to help you to give the best care to your loved one with help from the Scleroderma Foundation.
- The more you know about scleroderma, the better caregiver you’ll be. Ask your loved one’s healthcare team questions about the progression of the disease, the treatments, how the medications work — don’t be afraid to ask them to simplify things for you if you think they are using too much medical jargon.
- Read about the latest research and clinical trials and sign up for newsletters from reliable sites and Facebook pages that deliver up-to-date information about scleroderma.
- Ask the healthcare team to train you in managing treatments and medications at home and ask if there is anything else you may need to know about caring for someone with the condition.