4 Tips for Caring for Someone With Scleroderma

Get Organized

  • Keep all your loved one’s doctor and hospital notes, test results, appointments, medication information, and insurance details in a folder so that information can be easily accessed.
  • If your loved one requires IV treatment, keep a first-aid kit in the home with a thermometer, catheter repair kit, backup pump, blood pressure monitor, and a small cooler box or ice packs that can be used to cool medications down if you’re out of the house.
  • If your loved one is on oxygen therapy, you’ll need to keep the following in your home: an extra prescription and a photocopy to keep on your person, a portable E-tank and flow regulator in case of a power cut, spare nasal cannulas, spare tubing and connectors.
  • Make lists of things you need to do for your loved one on a daily, weekly and monthly basis. Keep a large calendar with all appointment dates written in a prominent place.
  • Keep a log or journal so you can see what works and what doesn’t work in terms of care for your loved one.
  • Come up with an emergency plan and give a copy to other family members so everyone knows what to do.

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