- It may seem overwhelming at first, but you and your loved one will soon settle into a routine. Learn to take each day as it comes and go easy on yourself — there will be good days and bad days.
- Look after yourself: your health is important, too. Go see a doctor if you’re feeling unwell or feel you aren’t coping well emotionally.
- Don’t be afraid to ask for help from friends, family and your loved one’s healthcare team — you shouldn’t have to do this alone.
- Join a support group. There are many Scleroderma Foundation Chapters around the country and online communities that can offer emotional and practical support.
- It’s important that you continue to show the same level of respect to your loved one as you did before they got sick.
- Allow them to make their own decisions regarding their treatment and other aspects of their illness.
- Encourage them to be as independent as possible, don’t assume they can’t do something for themselves — ask!
- Give them space when they need it and use the time to do something nice for yourself.