Patients say it feels like a stabbing, shooting, electrical shock-like pain. In the typical form of the disorder, attacks last about 20 seconds to minutes, but the attacks can happen up to 100 times a day. Some describe it as extreme burning, fiery, aching, pulling pain. The pain may be constant (if you have the atypical form). My mom has both forms.
Only 1 in 20,000 people have been diagnosed with this condition. There is not enough being done to help my mom and the other people hurting from this. She has had two brain surgeries already.