The Monster in My Face: What the Pain of Trigeminal Neuralgia Feels Like

“Trigeminal neuralgia (TN) is considered to be one of the most painful afflictions known to medical practice.”

“Trigeminal neuralgia also known as tic douloureux, sometimes is described as the most excruciating pain known to humanity.”

“Of all of the pain conditions that chronic pain patients experience, there are arguably none worse than the pain of trigeminal neuralgia.”

“Often called the ‘suicide disease’ because 25 percent of people with the condition die by suicide.”

I continued to suffer several additional attacks before being seen by my neurologist where I did get the confirmation of trigeminal neuralgia (TN). The trigeminal nerve is the fifth of 12 pairs of cranial nerves in the head. It is the nerve responsible for providing sensation to the face. I have since developed glossopharyngeal neuralgia(GN) on the other side of my face as well. GN is also excruciating and has even affected my airway and my ability to swallow at times. Glossopharyngeal neuralgia is an irritation of the ninth cranial nerve, causing extreme pain in the back of the throat, tongue and ear. I take several medications now that help these conditions but I still get shorter attacks here and there that will stop me dead in my tracks wherever I am. Surgery options are available for some individuals with these terrible diseases but they are very serious surgical procedures.
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