After you get a full workup from your neurologist, you can ask him to write an emergency care plan to bring to the ER with you to avoid any questions or confusion about what you need.
Finally, you may be able to diagnose yourself. A leading international researcher and neurologist on trigeminal neuralgia has created a self-diagnosis tool. He believes that it can guide anyone through a reasonably accurate diagnosis of face pain. It is available here.
Once you’ve come up with your likely diagnosis, take it with you to doctor appointments. With any luck, it will help the diagnosis journey go more smoothly and you will feel empowered.
3 Famous Faces
Trigeminal neuralgia is indeed rare, but it has still affected some current celebrities and historical figures.