Social activist and writer Gloria Steinem has spoken out about her challenges with trigeminal neuralgia. Steinem describes the condition as excruciating. When it flares, it renders her speechless and unable to walk.
HR, the singer of famed rasta band Bad Brains, underwent his own “bad brain” surgery to deal with his TN. Using GoFundMe, HR and his family raised $16,000 for the surgery and have reported that he is doing well now.
In 2011, Bollywood actor Salman Khan announced that he had trigeminal neuralgia and had flown to the United States to receive treatment. Khan used his position as a celebrity to spread awareness about the disease. He stated, “If there was a choice to give this pain to my worst enemy, I would not give it. They wouldn’t be able to take it.”
In 2015, Member of Parliament Andrea Jenkyns was chided by the media for being unable to finish the words in a public speech. Jenkyns spoke out against the reports by citing trigeminal neuralgia as the cause of her difficulty. She described the disorder as “excruciating” and “sporadic.”