1 The Good (Forget The Bad And The Ugly)
It’s hard to believe that there is any good news after all the unsettling factsdiscussed above. But there is.
If you suffer from TN or know someone who does, there are many resources and “best practices” you can follow to make the journey a bit more bearable and hopeful. Check these out . . . experts say they are well worth it.
Connection: Get involved in the Facial Pain Association, TNnME, and social media support groups.
Self-Care: Now more than ever, you have to be your No. 1. Know your triggers, and have a plan for dealing with them. Make a plan with your family as to how you will work as a group to deal with episodes. Find ways to relax and self-soothe, and commit to them.
Pain Management: Consider seeing a doctor who specializes in pain management. These specialists have alternative approaches to managing and coping with pain that many TN patients have found quite helpful.
Be Your Own Advocate: Know your condition from top to bottom—your exact diagnoses, your test results, your medications, your ER visits, and your doctors. Keep a file of all relevant medical information, and take it with you to all doctor and ER visits. Be the master of your medical records, and advocate for yourself!