The day finally arrived, I got to meet the specialist Dr Lara Katzin from USF in Tampa, a neuromuscular specialist who only treats MG and ALS patients. As soon as she started her exam, she said she knew for certain I had Myasthenia Gravis and unfortunately had several patients like myself who had been dismissed by other doctors. I wanted to rejoice, not because I had a disease, but because I had an answer, an explanation that I was not crazy and a Dr that believed in me!!
It took a SFEMG to confirm my diagnosis as my blood work tested negative for the MG antibodies. I was immediately started on IVIG treatment in the hospital. I was very sick from side effects in the beginning. I eventually switched to plasmapheresis treatments, 5 days every 3 weeks. I was promptly scheduled for a thymectomy (removal of the thymus gland) as my Dr wanted an aggressive treatment plan to hopefully minimize some of the disabling symptoms with Myasthenia Gravis.