My particular MG is refractory, meaning I do not respond well to commonly used therapies. I was unable to continue working. I missed my job and my students, but I became focused on recovering from the dramatic affects of Myasthenia Gravis. It’s been over 3 years now, and MG still controls my life as my abilities are reliant upon my treatments and how much activity I can do.
I have spent many, many days in the hospital. I have tried lots of medications. I have held such high hopes of better control over my MG and even remission!!
Myasthenia Gravis has completely changed everything in my life.
I have to prepare differently now when we do things as a family, work around my treatment schedule and bringing the wheelchair, keeping me in the shade and a place to rest if I need it. I cannot just get up and go anymore, my independence is slowly slipping away and I fear how long my body can endure all these treatments as I tire very quickly these days. I’m grateful for a wonderful Doctor, a caring nurse for IVIG, a loving and supportive husband and 3 children who love me despite the disease and some missed events over the last 3 years.