I’ve always worked to help others, my joy comes from doing for others. MG awareness became my passion to give me the opportunity to help other people fighting this disease like listening to a parent who needs support as they witness their children struggle or sharing advice about treatments and what I have learned. If I can make a difference in someone’s life by sharing awareness then it’s all worth it. There are many times when I have felt very alone because no one has ever heard of MG, which is what inspired the hashtag #IhaveheardofMG
I do not know what the future holds, as my disease process seems to be getting worse.
I am still adjusting and learning to live in the moment and to be grateful for my family and the support of the MG community. MG is a very lonely disease because people have difficulty understanding something they know nothing about. I didn’t know about the disease either until it entered my life.
My hope is that patients in the future have faster diagnosis, a doctors trust and knowledge, better treatments and of course a cure! My hope is for public awareness so that an MG patient is not left feeling alone and isolated and that people can recognize and empathize with a person struggling with MG. I want everyone, everywhere to one day say I HAVE HEARD OF MG!