Pediatric Scleroderma in Children

What is scleroderma? Scleroderma means hard (sclero) skin (derma). It is a rare autoimmune disease in which normal tissues are replaced with dense, thick scar tissue. Scleroderma can affect the skin or other organ systems. In children, scleroderma most frequently affects only the skin. What are the types of pediatric scleroderma? There are two broad types of…

3 Moments When Scleroderma Broke Me

As I’ve adapted to a life of chronic illness, key moments have broken my soul. These moments have refocused my view about life by pushing me past the definition of “normal” life circumstances. Scleroderma is constantly re-carving my comfort zone and placing me in situations that strengthen my emotional boundaries. The disease has taken parts of…

6 Types of Scleroderma

According to the Scleroderma Foundation, scleroderma is a chronic systemic autoimmune disease characterized by hardening (“sclero”) of the skin (“derma”), although it may also affect internal organs. There is currently no cure for scleroderma, but effective treatments for some forms of the disease and its wide array of symptoms are available. The six types of scleroderma can…

8 Tips for Exercising When You Have Scleroderma

People with scleroderma realize they need exercise to keep their joints flexible. However, those living with the condition can often experience a lot of pain and the idea of exercising and risking making the pain worse is not an appealing one. When they do find the will and energy to exercise, it’s important they pace themselves. If they push themselves too hard on a day they’re active, they may not be in good condition for the rest of the week. Anyone with scleroderma should talk to a doctor or someone specialized if they decide to go ahead with a regular exercise program. Not doing so involves a lot of risks that can easily…

4 Tips for Caring for Someone With Scleroderma

 If someone you love has been diagnosed with scleroderma, you may be concerned about how to best care for them and what you need to do to ensure they maintain a good quality of life. You will become an integral part of their healthcare team which may be challenging at times. We’ve compiled a list of tips to help you to…